Beyond the Fix or How Do I Live this F*ing Life?
10am Saturday in C5 second floor
virtually #BeyondTheFix on Twitter
I’m thrilled about these rockstar panelists:
Elena Tabachnick (M), Kate Carey, Shayla Dunn, and Lenore Jean Jones1
Full WisCon Schedule: https://account.wiscon.net/grid?search=&
In my case — and the case of my deaf friends who prefer to not use residual hearing when there’s another access option available — we’re patching across multiple languages/modalities on a time delay, and that triggers two competing thought streams. If you want to know what that feels like, try to fluently type a letter to one friend while speaking to another on a different topic. Physically, you can do it — your eyeballs and hands are on the written letter, your ears and mouth are in the spoken conversation — but your brain will struggle. Don’t switch back and forth between them (which is what most people will immediately start to do) — actually do both tasks in parallel. It’s very, very hard. In our case, one stream is lossy auditory English as the speaker utters something, and the other is clear written English or clear ASL visuals some seconds behind it. (Assuming your provider is good. Sometimes this data stream is … less clear and accurate than one might like.) Merging/reconciling the two streams is one heck of a mental load… and since we can shut off the lossy auditory English as “noise” rather than “signal,” sometimes we do.
"Oral deaf audio MacGyver: identifying speakers"
Better living with upper respiratory infections
( all about it )
Gluten Free Pie Crusting: An Observational Study
Last week MyGuy did apple pie SCIENCE! He bought a pack of two frozen GF crusts, nestled in artisanal aluminum foil. He then made cover crusts with two kinds of GF flour, providing ample comparison tasting opportunities.
( It was definitely a struggle. )
I worry that exposing my struggles will disgust my readers. That's why I have forty drafted essays which I can't delete and can't post.
Maybe I would be better of if I gaffiated?
What calls me most these days is working with my hands. Any ideas how I could give away my store of beaded jewelry in an equitable manner?
In the past two months I've realized not all are possible. ( One stroke forward, one stroke back, one nose full of choking chlorine )
Make those weasels laugh! I had tripped myself, yet again. But I also reset the timer for 21 minutes, and maybe I'll spend a year just enjoying the swimming as I'm doing it. Lose the aspirational nonsense for a while, let the pool be a place I go and let go, flow, float, flutter, and visit with my gym-sisters.
( So That's Me, Dunked )
(Yes, it's chlorinated. I've given up soap and shampoo; I apply Aveeno lotion after I rinse off; and MyGuy generously buzzed off most of my hair.)
So instead I learned about BOOP!
I didn't even know it was a word.
Evidently, it means to touch very lightly so as to gain the attention of another, with no hostile intent.
Lucky for my sighted readers, Reddit (the website without pity) has an entire boop subthread. Here it is sorted by popularity, and I can testify that the top ten boops are laugh-out-loud funny.
Oh brainweasels, I hate you so much.
Just like they say, tiny steps. Took months, but tiny little steps is how I did it.
Then came the delight of shipping it away.
Turns out the US Post Office has finally got it figured out when it comes to shipping small items. They drop off the boxes -- for free! If it fits in the box, one price. They have online calculators.
Being the Post Office, of course it's much more complicated than it needs to be. We'll see if my parcel actually arrives on the weekend.
In the meantime, I was truly delighted when a form requested me to enter "how many pounds total."
The instructions read:
You don't need to be precise here--we just want to know if we should bring a truck.
Now that's UX design I can endorse!
( What she said, what I did and didn't say )
The ideal response is not having it matter it all. Not surprisingly, Dave Hingsburger's recent entry explores what it's like when we can really not care. ( Dave Hingsburger's recent entry explores what it's like when we can really not care. )
( meditations on body/mindedness when you click )
My neck, shoulders, arms, and lower back are subject to fibromyalgia pain. It can start with a tiny trigger — an uninvited touch to my shoulder, or skewing my neck when sleeping, or reaching too far to prevent a fall — and then spreads as a dense burning underneath my skin. The pain feels like it's larger than my body.
For two decades, both ice packs and heat packs have helped with this pain. Today I understood why. When fibro pain expands beyond my own body map, I no longer feel capable of controlling it — it's outside my purview.
The cold and heat packs work in the same way; for simplicity I'll describe the effect with the cold version.
The pack serves different functions as it gradually warms up. Initially, the ice cold sensation simply trumps the pain. But as the pack warms, the temperature difference between my skin and the throb of the pain is like a strobe light outlining the edge of my body. These bright lights illuminate which muscles and tendons to consciously relax, as well as scare away the terrorizing shades of uncontrollable pain.
The cold packs are better analgesics, when pain has already taken hold. The hot packs are kinder, and hug places before they start screaming. I don't use electric heating pads, because it's too easy to fall asleep on them and they will burn you. There are various pack systems marketed to physical and occupational therapists; one can get two cases (to cinch around one's shoulder or leg) and then three packs. Two live in the freezer and one dallies near the microwave.
( ideal athlete in air and water )Olia Burtaev of the Australian Synchronized Swimming Team. Chris Hyde of Getty Images got this shot as she posed during a portrait session at Gold Coast Aquatic Centre on July 13, 2012 on the Gold Coast, Australia.
I've abandoned antifungal powders because they trigger asthma attacks.
I've used both Tolnafate 1% and Clotrimazole 1% cream, applied very generously.
I do wear the same wooly bed socks for three or four nights in a row, and I've been known to wear my compression knee-high hose two days running (they're a lot easier to put on the second day).
Thank you for any suggestions which may occur to you!
1. test TSH, free T4, free T3
2. Are the numbers ok yet?
3. Nope? Increase levothyroxine by 0.125 mcg
4. Wait 6 weeks and repeat
I've been doing this since last November and I'm well and truly tired of it. I'm moving as slow as a hippo in mud. Today I woke up to take my morning meds, went back to sleep for 3 hours, had breakfast, thought about reading some, pondered going swimming, relaxed in my bed, slept 3 more hours, watched pointless TV for 20 minutes, and had dinner.
Yeah, that's really boring.
The only good part is I'm giving myself permission not to flagellate for my lack of accomplishment. Hypersomnia is a real sign of a measurable disease.
Also both shoulders are cranky. One of them is so sensitive I can't turn over in the bed. It's intermittent; it's not so bad that it's inhibiting other ADLs; when I imagine interacting with an orthopod my blood runs cold.