jesse_the_k: amazed Alanna (hero of Staples/Vaughn SAGA comic) (alanna is amazed)
... is a Kickstarter-funded project that's almost over. I'm so lucky to be able to fund it.
https://www.kickstarter.com/projects/lynnemthomas/disabled-people-destroy-science-fiction-uncanny-ma/updates

Uncanny Magazine -- whose editors have personal relationships to disability -- picked up the mantle of "create a wonderful anthology themed by marginal creators" from Lightspeed.

Even if you can't contribute money, Uncanny is posting free essays from SF writers about the connection between SF and disability. The essays are wonderful, and I've learned something from every one of them.

I kept meaning to post a highlight entry, and wowza [personal profile] beatrice_otter has done it for me!

So, go read this post and read wonderful essays

http://beatrice-otter.dreamwidth.org/354745.html
jesse_the_k: Rubik's Cube puzzle with all-white faces labelled in braille (Braille Rubik's Cube)
In conversation with yesterday's Mingus essay, here's Deaf-Blind poet John Lee Clark addressing forced separation because of deaf-blindness, which he calls distantism:

begin quote
Each form of social bigotry has its distinctive personality and its unique set of intertwining evils. excerpt and context )
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
Mia Mingus has written another short, powerful essay on interacting with nondisabled people. She examines how we are forced into intimate interactions because we are disabled.
a taste )

It's challenging to maintain my self-confidence while experiencing the assumption that my boundaries don't exist, or don't count. Self-compassion meditation helps some. Snarkiness helps some.
jesse_the_k: Well nourished white woman riding black Quantum 4400 powerchair off the right edge, chased by the word "powertool" (JK powertool)
This 4:10 captioned video provides great background on the "wheelchair symbol," more formally known as the International Symbol of Accessibility. Using plain language, the presenter explains its history, application, why it applies to more than wheelchair users, and why it might need changing.

If you're disabled, how do you feel about this symbol? Do you find it helpful in the abstract? Is it deployed usefully in your life? Do you know of any different symbols that don't use wheelchairs?
video under the cut )
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
From Cal Montgomery, my disability studies mentor:

begin quote
[...snip...]
I can see the god of hands:
flapping in joy,
dancing full of language,
poring over six-dot cells of knowledge,
easing joysticks across broken sidewalks,
torn between frustrated teeth,
cracked and callused and sore,
dowsing for love on screens,
flipping tables, throwing chairs,
juddering to a rhythm of the nerves,
loose and still,
knotted,
contracted,
balled into fists,
wrapped around guns
that turn out to be trinkets,
bruised,
bloodied,
wet with tears.

I can see holiness
in the rising,
in the sharing,
in the reaching out to one another
against rejection,
in the demand
for freedom, food and futures,
even as your forces array against it. [...snip...]
quote ends

https://montgomerycal.wordpress.com/2017/07/14/mike-pence/
jesse_the_k: unicorn line drawing captioned "If by different you mean awesome" (different=awesome)
Even though the "International Symbol of Disability" is a wheelchair, wheelchair users don't have it "easy" because of ramps & lifts: click ) http://realsocialskills.org/post/162827175482/its-not-just-about-wheelchair-access
and from Alaina Leary [twitter.com profile] alainaskeys at the NYTimes' very worthwhile disability series: clicky ) https://www.nytimes.com/2017/07/12/opinion/ehlers-danlos-family.html

Thanks to [personal profile] sasha_feather, I'd already read Alaina Laney's great essay on the trope of villains with facial deformities in Teen Vogue.
http://www.teenvogue.com/story/disfigured-villains-dr-poison-wonder-woman
jesse_the_k: amazed Alanna (hero of Staples/Vaughn SAGA comic) (alanna is amazed)
WisCon 41 was great. I got a few chances to use the scripts you provided but mostly it was celebratory. I am able to sit up, think, move around fairly easily the next day, which represents such a lovely change. I got to see many annual friends and make some news ones.

And I have notes and will be trickling those out soon.


But in the meantime run and watch this amazing vid by [personal profile] eruthros

http://eruthros.dreamwidth.org/341770.html

Title: Building a Body
Fandom: Automata
Song: Poor Atlas by Dessa
Length: 1:48
Contains: Institutionalized violence against robots, reference to robot sex slaves, flickering light (campfire).

It's ethereal, it's beautiful, it makes me think about bodies.
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
Found three nifty resources as I was preparing for my WisCon panel (NEXT WEEK!)

Beyond the Fix or How Do I Live this F*ing Life?
10am Saturday in C5 second floor
virtually #BeyondTheFix on Twitter

I’m thrilled about these rockstar panelists:
Elena Tabachnick (M), Kate Carey, Shayla Dunn, and Lenore Jean Jones1

Full WisCon Schedule: https://account.wiscon.net/grid?search=&view=list

check out Jess Jacobs, Insickness Podcast, and Fully Sick )

WisCon 41

Apr. 30th, 2017 12:49 pm
jesse_the_k: manipulated photo of white woman with glasses & big smile (JK happy 61)
Yep, I'm going. Last year was the best one ever, so I'm taking a chance...

I'm also on one panel:

Beyond the Fix or How Do I Live this F***ing Life?
Sat, 10:00–11:15 am
Conference 5

M: R. Elena Tabachnick; Shayla D, Lenore Jean Jones, Jesse the K

When you know there's no fix, your disability's never getting better, might get worse, and acceptance is the only possibility, it's time to share (aka vent). On this panel, we'll air our pet grievances, exchange survival strategies, and discuss the challenges—both surprising and predictable—of life with disability. We'll also share stories we've used to keep going.

I'm always eager to meet first-timers, and of course I'm thrilled to see my con-pals. I'll be at the hotel & therefore available for most any occasion.
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
Surprising – and gratifying – that the NYTimes, of all places, is publishing a high-quality essay series on disability. The writers are experts by experience, exploring the social model in public.

http://www.nytimes.com/column/disability

Rivers Solomon’s essay on diabetes is particularly insightful and beautifully written: they write what diabetes means at the intersection of black, fat, & dyke.

taste & link inside )

http://www.nytimes.com/2016/10/12/opinion/diabetes-diet-and-shame.html

jesse_the_k: amazed Alanna (hero of Staples/Vaughn SAGA comic) (alanna is amazed)

[personal profile] sasha_feather and I just watched a six Oscar-winning animated shorts. I borrowed the library disc for Shaun Tan’s surreal, confused, and ultimately sweet “The Lost Thing.” It lives up to Tan’s very high standard, and We enjoyed it very much.

Then we were blown away by the documentary animation “Ryan” by Chris Landsreth. YouTube embed )

jesse_the_k: Female head inside a box, with words "Thinking inside the box" scrawled on it. (thinking inside the box)
I eagerly anticipate every new post by Mel Chau thanks to her glorious insights ) although half of them discuss pedagogic philosophy above my head. The other half include glorious insights into her intersectional experiences as Asian-American, engineer, deaf & Deaf, female, teacher. This essay addresses the high cognitive load lip-reading imposes as well as the utility of residual hearing. A taste:

In my case — and the case of my deaf friends who prefer to not use residual hearing when there’s another access option available — we’re patching across multiple languages/modalities on a time delay, and that triggers two competing thought streams. If you want to know what that feels like, try to fluently type a letter to one friend while speaking to another on a different topic. Physically, you can do it — your eyeballs and hands are on the written letter, your ears and mouth are in the spoken conversation — but your brain will struggle. Don’t switch back and forth between them (which is what most people will immediately start to do) — actually do both tasks in parallel. It’s very, very hard. In our case, one stream is lossy auditory English as the speaker utters something, and the other is clear written English or clear ASL visuals some seconds behind it. (Assuming your provider is good. Sometimes this data stream is … less clear and accurate than one might like.) Merging/reconciling the two streams is one heck of a mental load… and since we can shut off the lossy auditory English as “noise” rather than “signal,” sometimes we do.

"Oral deaf audio MacGyver: identifying speakers"

http://melchau-feed.dreamwidth.org/24279.html

Or

http://blog.melchua.com/?p=5184

jesse_the_k: drawings of white hand in ASL handshapes W T F (WTF)
That Deaf Guy is a newspaper-style comic strip that's been funny for five years. I found it today, and I grinned through every one. (No text descriptions, tragically.)

click through for image, my description follows here
http://www.thatdeafguy.com/?p=106

[Image description: At a restaurant, two women at a table look over at a booth where a child, father, and mother are signing. The child is signing "Yes," the father is signing, "You have to poop right now?" and the mother is signing, "This minute?" One of the woman at the table says "Isn't sign language beautiful?" Description ends]
jesse_the_k: Sketch of pair of hands captioned "If you're OCD and you know it wash your hands" (OCD handwasher)
The Bad Doctor—Ian Williams5 of 5 )

Read if ... You're curious about mundane details of an NHS doctor's life, recreational cycling, OCD, or life in Wales.

Avoid if ... You dislike satanic panic, suicidal ideation, or enactments of OCD

Author website: http://www.myriadeditions.com/creator/ian-williams/
available in print, PDF, Sequential format for iPad

jesse_the_k: Hands open print book with right side hollowed out to hole iPod (Alt format reader)
There's lots of disability-themed fiction, memoir, & poetry online, but as with any search on "disability," it's hard to separate medical stuff from writings by us about us.

Now there's an umbrella org to make stuff easier to find:
Disabilities Literature Consortium
http://dislitconsortium.wordpress.com
dislit666@gmail.com

Some of the mags I've enjoyed:
Breath and Shadow )
http://www.abilitymaine.org/breath
breathandshadow@gmail.com

Kaleidoscope )
http://www.udsakron.org/kaleidoscope/issues.aspx

Pentimento )
http://www.pentimentomag.org

Wordgathering )
http://www.wordgathering.com
submissions@wordgathering.com

Intima )
http://www.theintima.org/
jesse_the_k: Well nourished white woman riding black Quantum 4400 powerchair off the right edge, chased by the word "powertool" (JK powertool)
[ETA: fix Annalee's twitter handle and bad HTML]

Annalee Flower [twitter.com profile] leeflower
has a GREAT! intro post re: SFF & Disability.
http://thebias.com/2016/02/16/the-geeks-guide-to-disability/
quote begins
I’m hoping that if I walk through some of the more common misconceptions, I can move the needle a little–or at least save myself some time in the future, because I’ll be able to give people a link instead of explaining all this again.
[…snipped…]
The science fiction community tends to take this diluted version of the medical model to extremes. Because we’re used to speculating about abilities that humans could have if certain fictitious conditions were met, some of us consider all human bodies fundamentally broken. It’s easy for us to fall into the trap of thinking that, for example, since being able to fly unaided would be really cool and convenient, we must all be disabled because we can’t fly.

Here’s the thing, though. Because we can’t fly, we have built a world that is accessible to people who cannot fly. We build roads and sidewalks to facilitate ground travel and elevators to provide access to tall buildings.

quote ends


Read it and link like a wild thing :,)
jesse_the_k: Hands open print book with right side hollowed out to hole iPod (Alt format reader)
Some of my favorites since the last time it was cold (because it will be cold again soon).


A BRIDE’S STORY
—Kaoru Mori4 of 5 )
Swimming Studies—Leanne Shapton 4 of 5 )
Good Kings, Bad Kings—Susan Nussbaum 4 of 5 )
Fading Scars—Corbett Joan O'Toole4 of 5 )
jesse_the_k: Extreme closeup of dark red blood cells (Blood makes noise)
I've been privileged to hear Mia Mingus speak three days in a row. Among other topics, she emphasized how important trust is in the relationship between organizer and community. earlier and later examples )

Here's an outstanding example of organizing through community service:
Tired of doing hair, don't know how, or don't have time? No Problem! We will do your baby's hair for free while they watch a movie and eat snacks.
Complete info:
https://www.facebook.com/events/791639540981877/

Tell me about more effective service projects, which also increase community awareness of political issues.

about me

jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
Jesse the K

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