Your first chair is a learning experience.
Only time and experience can teach you what you need. Armrests, for example: they get in the way when you do a sliding transfer, and they add weight. On the other hand, when you’ve been rolling around for a while, you may discover your tired shoulders need armrest support to hold a book.
Chances are you have been limiting your travels recently: it’s only once you’re in your chosen environment with a wheelchair that you learn if you need larger casters (to handle cracks and grooves) or smaller ones (to maneuver very tight spaces). Experience will teach you what’s too heavy to lever into the trunk of your car. As you use the chair, your body envelope changes. So will your ability to judge how to navigate and how much room you really need.
Start with a used chair.
Used chair pricing is weird. List prices are irrelevant. Insurance companies pay around half the listed price for new equipment; Medicare/Medicaid pay less. Since no insurance company pays for used equipment, the secondary market is based on end-users’ investment–usually, what their copay was when new.
Don’t use insurance to buy your first chair.
Most insurers only pay for one wheelchair every five years, and they only purchase new. If there’s any chance that you’ll need powered instead of manual mobility, it’s very important to get insurance support for that (more expensive) purchase.
Connect with Chair Users for hands-on experience
Independent Living Centers (aka CILs or ILCs) advocate for disabled people. Find the one in your state, and ask for contacts among local wheelchair users. (That’s how I learned to operate my powerchair!)
Find support groups with people who already use chairs who may let you try them out. Wheelchair athletes can be the most flexible about trying out equipment (since they usually have both everyday and sport chairs). Are there “adapted fitness” classes locally? The Wheelchair Sports Federation can point you to a local group.
Some durable medical equipment companies rent lightweight or sports wheelchairs, which is worth investigating if the above don’t pan out.
Places to Buy Used
- Independence First Mobility Store I have good personal experience with these folks. They refurb the chairs before they sell.
- CADATA is a US database of state organizations connecting you to assistive technology
- Goodwill / Savers / second-hand stores
- Disease-specific groups, such as amputees (diabetes, veterans); MS Society; ALS support groups; “adaptive fitness” or SCI recreation groups, and UCP/United Cerebral Palsy, whose mission extends across the disability spectrum.
More Reading & Reviews
Reinventing the wheel: form, function, and your first wheelchair is an excellent essay on the process. Kabarett writes from a UK perspective,
but the basic info and comments are great. with a different funding model, and the comments contain much wisdom.
United Spinal Association’s Tech Guide has enduser/caregiver reviews relevant to your interests. Like UCP, United Spinal doesn’t require you to have a spinal cord injury to take advantage of their resources.
The CareCure Community Forum Rutgers professor Dr Wise Young nurtured this wide-ranging board. Lots of equipment info deep in there.