jesse_the_k: Perfectly circlular white brain-like fungus growing on oak tree (Default)
Mia Mingus has written another short, powerful essay on interacting with nondisabled people. She examines how we are forced into intimate interactions because we are disabled.
a taste )

It's challenging to maintain my self-confidence while experiencing the assumption that my boundaries don't exist, or don't count. Self-compassion meditation helps some. Snarkiness helps some.
jesse_the_k: Due South's Ray Kowalski and Benton Fraser both rubbing their foreheads (dS F/K headache)
Been a while, but I've been amusing myself, as well as intermittent low bits. Turned my back on Facebook, abandoned Twitter after the SDS conference, spending way too much time on MetaFilter, which is beginning to annoy me in useful ways, as well as doodling away a happy hour on Tumblr posting nothing. Reading actualfax books—paper as well as e—and fanfiction, of course. Here's a sprinkling of things I've stumbled across. Ask me anything (as they say) in the comments and I'll bloviate.

I've worked as a freelance calligrapher, typesetter, and graphic designer. This cartoon beautifully, and painfully, captures the continual teeter-totter between "being true to your own self" and "getting paid"
http://the-toast.net/2014/08/13/a-cartoon-about-book-design/

I've been having more difficulty understanding speech, especially at noisy places like cons (use your mics!) and restaurants. I've also had a strange two-tone mechanical humming in my ears for the past year or so. Okay, time for a hearing test. Mostly painless: put on these headphones, play noise in one ear and words in the other, parrot back the words. But then there was
non-consensual penetration of body cavities )

That was a lesson in how to alienate prospective patients. It makes me wonder what in hell medicos mean when they say, "this will be uncomfortable, but let me know if it hurts"? Is there some level of pain which reliably causes a reflex response in humans, and therefore docs can ignore unreliable information like "Oww! That hurts! Stop that! NO."? I know that enough pain makes me pass right out. Or say if I vomit, does that mean I've crossed the line from "uncomfortable" to "hurts"? How about if I curl up on cool bathroom tiles? Or maybe when I sandbag myself with microwave hotpacks? I'm just working back from the "pain behaviors" I've demonstrated when it's hurt too much for me at home.

Anyway, the exam result is: I have

  • excellent hearing in optimal conditions (cool)

  • difficulty "hearing in noise" (yeah, that's why I was there)

  • tinnitus (Checking just now at HearingLossHelp druglist (PDF), I'm taking three meds known to cause tinnitus in some people. Huh and

  • Hyperacusis



She says wearing 29dB earplugs only makes the hyperacusis worse. (I wear them swimming and when I'm on the bus.) She's making "musician's earplugs" for me which dampen all sound equally across the noise spectrum which should "take the edge off" of the loudness of things.
jesse_the_k: uppercase Times Roman "S" with nick in upper corner, text below reads "I shot the serif." (shot the serif)
More Boundaries & Wheelchairs
The awesome vibes from my last post made it all the way to Chicago. Captain Awkward's letter yesterday was I'm in a wheelchair and people are condescending as fuck. Tasty reading, and hundreds of non-hostile, yet non-submissive responses.

Th@ is wh@ ma@terswh@'s up? )

Locked Out: Investigating Societal Discrimination against People with Disabilities Due to Inaccessible Websites
A clear, fun, and useful presentation on the basics of why we need accessible sites )

Cyncism is consent
a thought for the day if you're a weary advocate )

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jesse_the_k: Perfectly circlular white brain-like fungus growing on oak tree (Default)
Jesse the K

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