jesse_the_k: Pill Headed Stick Person (pill head)
[personal profile] jesse_the_k
I’ve been hypothyroid for a long time, and happily, simple hypothyroidism is treatable. I’ve been taking thyroid meds–levothyroxine (T4) and lyothyronine (T3) .

Up until yesterday, hypothyroidism has been inexpensive to treat. Lyothyronine was synthesized in the 1950s, and was first approved by the US Food & Drug Administration in 1954.

Thursday I saw my endocrinologist and she suggested changing my T3 dosage. But my pharmacy had bad news: they didn’t have access to any generic lyothyronine. My insurance won’t pay for a proprietary (brand-name) drug unless the physician explicitly requests that in the prescription. So, I ask the endo to write another script. Then MyGuy went to pick it up and


STICKER SHOCK


Generic lyothyronine: $34.24
Cytomel (lyothyronine from Pfizer): $654.40.

Yes, that’s a twenty-fold increase. I haven’t been able to find out why: it could be because the drug was manufactured in Puerto Rico; it could be because [horrible news thing I don’t know details of] changed the tax incentives for generic drug producers; it could be the phase of the moon.

Two pieces of good news: I can afford to pay for it, and I can finally spell lyothyronine.

⇾1

(no subject)

Date: 2018-01-20 11:18 pm (UTC)
legionseagle: Lai Choi San (Default)
From: [personal profile] legionseagle
That is the sort of news which makes me ashamed to be an intellectual property lawyer. I hope the situation eases soon.
⇾1

(no subject)

Date: 2018-01-20 11:21 pm (UTC)
worlds_of_smoke: A picture of a brilliantly colored waterfall cascading into a river (Default)
From: [personal profile] worlds_of_smoke
Jesus Christ on a Triscuit! ISTG, the pharmaceutical companies have a fucking racket.
⇾1

(no subject)

Date: 2018-01-20 11:30 pm (UTC)
isis: (wtf?)
From: [personal profile] isis
Hply sjot! That's really ridiculous.
⇾1

(no subject)

Date: 2018-01-20 11:32 pm (UTC)
capri0mni: A black Skull & Crossbones with the Online Disability Pride Flag as a background (Default)
From: [personal profile] capri0mni
Day-um!
⇾1

(no subject)

Date: 2018-01-20 11:57 pm (UTC)
petra: Barbara Gordon smiling knowingly (Default)
From: [personal profile] petra
There are few things in my life that make my jaw drop as hard as Rx drug prices, because I am both lucky in much of my life and unlucky in health.
⇾1

(no subject)

Date: 2018-01-21 05:39 am (UTC)
grrlpup: yellow rose in sunlight (Default)
From: [personal profile] grrlpup
holy shit! D:
⇾1

(no subject)

Date: 2018-01-21 06:27 am (UTC)
bibliofile: Fan & papers in a stack (from my own photo) (Default)
From: [personal profile] bibliofile
HOLY CRAP.
⇾1

(no subject)

Date: 2018-01-21 02:13 pm (UTC)
j00j: rainbow over east berlin plattenbau apartments (Default)
From: [personal profile] j00j
good grief.
⇾1

(no subject)

Date: 2018-01-21 02:46 pm (UTC)
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
From: [personal profile] davidgillon
Eek! Is that inability to pay hands on the generic just a temporary thing, or known to be permanent?

One thing's for sure, if the generic can be manufactured for $35, then Pfizer can do it for the same.
⇾3

(no subject)

Date: 2018-01-23 12:40 am (UTC)
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
From: [personal profile] davidgillon
{Rolls eyes} {Winces}
⇾1

(no subject)

Date: 2018-01-21 06:14 pm (UTC)
sasha_feather: Steam punk goggles (Steam punk goggles)
From: [personal profile] sasha_feather
My Enbrel went up a lot too - it's brand name and there is no generic AFAIK. But I have to use the drug company's card to buy it now. The copay was 10 dollars, and now it's 2000 dollars for one month (four treatments). So, the maker sends me a pre-paid card which i have to activate and use, and jump thru hoops etc.
⇾3

Re: Wait -- the COPAY is $2k?

Date: 2018-01-31 06:17 pm (UTC)
From: [personal profile] penta
I work for the folks who make Humira, sort of. (subcontractor to a contractor, long story) Taking patient support phone calls, ye olde customer service things. I used to feel OK about it, not great but OK.

Now I feel icky. I know that tactic exists and is used, but still. Usually, my job doesn't depend on it.
⇾5

Re: Wait -- the COPAY is $2k?

Date: 2018-02-02 03:50 pm (UTC)
From: [personal profile] penta
Thanks for the reassurance, seriously.
⇾2

(no subject)

Date: 2018-01-22 08:36 pm (UTC)
kshandra: Graffiti of hands ripping open a dress shirt, Superman fashion, to reveal the word FAIL (FAIL)
From: [personal profile] kshandra
The Canadian pharmacy I've been using for my diabetes meds does not appear to carry Enbrel, or I'd recommend them to you in a heartbeat. Good luck.
⇾1

(no subject)

Date: 2018-01-22 05:55 am (UTC)
wendelah1: (42)
From: [personal profile] wendelah1
There is a nationwide shortage of levothyroxine but lyothyronine should be available. Is there only one pharmacy in your town? I'd be looking around for another supplier. https://www.goodrx.com/cytomel?c=
⇾3

(no subject)

Date: 2018-01-22 05:19 pm (UTC)
wendelah1: (Honey Bees)
From: [personal profile] wendelah1
Yes. The levo shortage is indeed related to Puerto Rico, as is a nationwide shortage of normal saline bags for IV hydration which is a big problem if you're a country in the middle of an extra bad flu epidemic.

Your M&P's supplier is a cutthroat. Why can't there be a nationwide consortium of small pharmacies to even the playing field? Until they get this sorted out, I would consider scheduling vacations around my pill supplies and look around for a national chain to deal with locally or even do mail order. My insurance is an HMO (Kaiser) and they give me three months supply for the price of two if I choose their mail order delivery. God, I love Kaiser. Maybe you can afford to pay for an outrageous markup on Cytomel once but I bet you can't do it forever without having to cut back on something else you need or want.
⇾1

(no subject)

Date: 2018-01-22 04:31 pm (UTC)
killing_rose: Raven on an eagle (Default)
From: [personal profile] killing_rose
in further horrifying news, it's not just the US. The NHS spent a decent amount of the past year declaring they'd no longer cover the drug at all. (This was rescinded.) Because the price had gone up.

I use a small local pharmacy (because they do things like deliver my drugs, and will actually deliver my pain medication, and have been known to drop off my meds after hours if i was a total dingbat and ran out of meds before i called them. They'll also give me enough to tide me over while arguing with insurance or docs for the refill. This last round, my Symbicort, which I forgot to cancel the refill [i hoard meds after i hit my out of pocket max for the year, and even if i took it as prescribed we easily have half a year's supply; we also have 10 boxes of Voltaren and four open tubes], clocked in at 200, but they found a coupon to get it to zero.), but i've had to go to chain pharmacies for a couple of meds.

(Actually, as a question, have you tried voltaren? I can't remember how much chronic pain you have in your muscles/skeleton, and lords know i may very well have asked this before.)
⇾3

(no subject)

Date: 2018-01-22 07:29 pm (UTC)
killing_rose: Raven on an eagle (Default)
From: [personal profile] killing_rose
I really need to remember to badger Doc for patches this year. (Since at this point, it looks like we're going to have to just say fuck it and see him still.)

Yup! Pretty sure that's where Yena and I originally saw it mentioned.
⇾3

(no subject)

Date: 2018-01-23 02:32 pm (UTC)
vass: Icon of Saint Ignatius being eaten by lions (eaten by lions)
From: [personal profile] vass
(here from fucking_meds and boggling in horror at your price hike)

Voltaren gel is great, and I kind of like the smell. That said, if there are cats in your life and you don't already know this, don't let the cats lick your skin where you've applied it, or rub up against it (they'll lick it off their own fur.) It's dangerous for them even in very small doses. I don't know if the same's true for dogs. It might be, but cats have weird metabolisms even compared to other animals their size, so who knows.
⇾1

(no subject)

Date: 2018-01-23 02:27 am (UTC)
lilacsigil: 12 Apostles rocks, text "Rock On" (12 Apostles)
From: [personal profile] lilacsigil
(Over from fucking meds) Holy crap! I'm on T4 which works well for me, but when I was on T3 it was $17/month, too cheap to even be subsidised for someone without a healthcare or pension card. I just checked the price now, and it's gone up...to $20. Pfizer are still fucking evil all over the world, though.
⇾1

(no subject)

Date: 2018-01-23 02:40 am (UTC)
laceblade: Headshot of Risa from Love&Com anime, giving the dank-eye to upper-left. (Love*Com: Risa dank eye)
From: [personal profile] laceblade
Fuck pharmaceutical companies.
⇾1

Here from Fing Meds

Date: 2018-01-23 04:27 am (UTC)
devilc: Rage (Rage)
From: [personal profile] devilc
Christ on a cracker!

(I take armor thyroid because T4 alone is not enough for me, and I want the calcitonin for bone health.)

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