jesse_the_k: Black dog staring overhead at squirrel out of frame (BELLA expectant)

I’m seeing more progress pride flags flying in my neighborhood. In the poll, I’m using “queer” in the broadest possible sense: any (sexual or gender) (orientation or preference). The poll is anonymous—even I can’t see who voted how.

Progress Pride Flag )


Poll #32560 Pride Flag Messaging
This poll is anonymous.
Open to: Registered Users, detailed results viewable to: All, participants: 70

When you see this flag flying on an unknown residence, what meaning do you take away?

View Answers

Someone queer lives there
36 (51.4%)

Someone who lives there has a queer family member
20 (28.6%)

Someone lives there and wishes to show support for queer folks, without any indication of the resident’s queer status
57 (81.4%)

Someone thinks the flag is pretty
2 (2.9%)

Someone wants to say, “let’s queer the universe, motherfuckers, cause the status quo is woeful.”
29 (41.4%)

See my answer in comments
5 (7.1%)

Ticky?

View Answers

is tacky
8 (17.8%)

is here
42 (93.3%)

jesse_the_k: Modern design teapot with two cups (Share tea with me)

I first encountered the term brain fog in the mid 1990s on a fibromyalgia listserv. I see it popping up all over mainstream media in re: Long COVID.

Vocabulary derail: I’m a picky fussbudget so I describe my current cognitive issues as "trouble making new memories" as well as "difficulty word-finding."
massive frustration derail: can't nail down the source of these impairments: candidates include ME/CFS, fibromyalgia, PTSD, depression, anxiety as well as the medications I take for all those things.

Spilling the Tea )

It took me four months to realize that I needed to use a teapot I'd already bought to make tea.

That is brain fog.

How do you feel about the term brain fog? Does it build a bridge from our disabled experience to non-disabled people? Does it minimize the impact? Feel free to rant.

jesse_the_k: Ultra modern white fabric interlaced to create strong weave (interdependence)

[personal profile] cosmolinguist explores the gender pitfalls of defining a space as welcoming to "women and non-binary" people. Relevant to my interests because my wonderful comics club membership policy is "cis men have staffed the gates into comics for too long, so they're not welcome in clubMX." We've tried to express that in positive terms — here are the folks who are welcome — but given our rejection from traditional comics circles, essentially (hah!), the quoted negative definition above is what unites us.

people are doing an unreasonable thing in order to achieve a reasonable goal. I'm sure any of us could think about times in our lives that cis men were horrible to us, all the way from #EverydaySexism to actual trauma. And especially when it comes to groups for people who are queer/kinky/polyamorous/anything about sexualities and relationships, safety becomes even more important. But keeping all the cis men out isn't the way to do that. I'm not even saying "not all men," I'm saying "not only cis men." Not all predatory, boundary-crossing, consent-lacking behavior comes from them. Keeping them out is not necessary or sufficient for a space to be safe or welcoming.

full post


[personal profile] hellofriendsiminthedark precisely captures why disabling metaphor is harmful

In a world where blindness is inherently understood as a debilitating and limiting condition, "you're blind to the red flags" does mean "you're ignorant of the red flags."

In a world where sight is inherently understood to be one of many modes for gathering information, but is also understood to be neutral in value and not in and of itself individually essential in the grand scheme of gathering information and perceiving a legitimate model of the physical world, "you're blind to the red flags" would mean "you may not be able to see the red flags, but you can still intuit their existence. You can still obtain information about their presence using your other senses and other information around you, for example the ways in which the red flags interact tangibly with things you can perceive. You can still understand what a red flag would signify without having to be able to identify that specific denotation of a red flag. You may sense the effects of the red flag using the senses that actually matter in your experience of the world and thus posit their presence just the same as a metaphorically sighted person would by perceiving them through sight."

full post

jesse_the_k: Large exclamation point inside shiny red ruffled circle (big bang)
The Motherboard listened, and they're changing the name.
We’ve read your thoughtful and pain-filled emails, tweets, and Facebook posts. We are sorry for the harm that’s been done, especially to some of the most marginalized members of our community.

We recognize that the award is necessary to the community, but can’t go on under its existing name. Now we need to figure out what to do next and how to do it. We’re working on it. And we’ll say more within a month.


suggest new names, read two wonderful essays )
jesse_the_k: iPod nestles in hollowed-out print book (Alt format reader)

Great reading today from three places.

On DW:

[personal profile] seperis makes me laugh really hard about living with bunnies

Bunnies can eat through anything. Even zip ties. Even dozens of zip ties. Even all the zip ties. That is how I ended up with baby bunnies in the first place. They can also jump under duress three feet at a run and two feet just because they're assholes. (One of my tiny psychopaths can do three and a half feet, catch himself halfway over the top of the play area, and shimmy over.) Rabbits also like access to small, comforting, dark spaces to hide and cuddle (each other, not me).

https://seperis.dreamwidth.org/1041231.html
further background on bunny ownership: https://web.archive.org/http://seperis.tumblr.com/post/166559117285/the-bunny-files


On Granta:

Jillian Weise is a poet, performance artist, prosthetic-wearing ass-kicker. She delivers the Donna Haraway smackdown I've been waiting 20 years for:

When I tell people I am a cyborg, they often ask if I have read Donna Haraway’s ‘A Cyborg Manifesto’. Of course I have read it. And I disagree with it. 286 wise words )

https://granta.com/common-cyborg/

I first encountered Jillian in her Tipsy Tullivan persona, as she excoriated AWP for their hostility to disabled writers:

https://www.youtube.com/channel/ucwfcyz-fipjq0u6v-fevomq/featured

To my delight, she was on one AWP 2016 panel, celebrating the 40th anniversary of her publisher BOA, reading several poems and a call to action/drinks. uncaptioned video )


On Captain Awkward
I subscribe to the DW [syndicated profile] captainawkward_feed

Cap addresses “Tips for staying positive when your body hates you.” from a PhD student dealing with sudden liver cancer. Cap wisely turns to the wisdom of disabled people, and offers lots of excellent suggestions.

What if I told you that you don’t have to feel positive or stay positive or be positive. Stay alive. Positive can wait.

[... snip ...]

Fight the idea that being sick is something you’re inflicting on others. You say: “I feel like I’m a drain on everyone around me and I can’t even contribute academically anymore.” This ableist framing is hurting you and other people.

Your worth is not based on how much money you earn, it is not based on how much research or scholarship you do.

http://captainawkward.com/?p=46182

jesse_the_k: Big cheryl haworth deadlifts under Olympic Rings (cheryl wins olympic gold)

I’ve just1 learned that Ruth Badner Ginsburg, our brutally strong and smart Supreme Court justice, has a necklace she wears when she dissents from a decision the court hands down. This dissent necklace is a studded collar that stretches like a smile from one shoulder to the other, comprising 21 thumb-shaped wedges.

She wore it the day after the 2016 election.

You can buy replica pendants, earrings, tie clips etc., as well as stickers.
https://dissentpins.com/collections/dissent-collar/products/dissent-collar-sticker

Bustle has an illustrated article about RBG’s collection of “statement” accessories.
https://www.bustle.com/p/what-do-ruth-bader-ginsburgs-collars-mean-each-one-has-a-special-story-9288551


  1. Given my news fast, I’m willing to admit I’m behind the times. ↩︎
jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (Default)
https://siderea.dreamwidth.org/1402234.html

She's speaking from her experience as a programmer and a psychotherapist. She emphasizes how important small differences in word choice can be, and the resistance to that notion.

In comments, folks are talking about resources for learning how to communicate more effectively, as well as maybe starting a DW comm where we could "create scripts" in the manner of Capt Awkward.
jesse_the_k: That text in red Futura Bold Condensed (be aware of invisibility)
What We Lost: Undoing The Fairy Tale Narrative Of Adoption by Liz Latty

Until reading this piece, I’d thoughtlessly hummed along to the stereotype that adoptions are about how wonderful the adoptive parents are.

read it now )

I’m Done Debating Racism With the Devil: White people playing devil’s advocate in conversations about race are completely counterproductive to actual progress. by Maya Rupert

“Devil’s advocate” arguments have always annoyed and angered me, but this essay explained why.

now you can too )

jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (Beating heart of love GIF)
Thanks to a [personal profile] liv-triggered happy rabbit-hole I just read Marissa Lingen's fabulous post illuminating why most people find the experience of impairment so mystifying.

AND YOU MUST READ IT TOO!

http://mrissa.dreamwidth.org/720690.html

if you need convincing: an excerpt )
jesse_the_k: Text: "I'm great in bed ... I can sleep for days" (sleep for days)

Disability Studies Quarterly is available free online at dsq-sds.org. The Summer 2017 issue of Disability Studies Quarterly is full of interesting reading that's accessible to folks without a graduate degree.

http://dsq-sds.org/issue/view/184

Acknowledging pain and limitation is a welcome turn in Disability Studies theorizing: a long-term consequence of the intersection of feminism with DS. Women's disability is so often driven by illness, that we've brought willingness to profess that pain.

UW-Madison Prof. Ellen Samuels writes so well, so deeply, so clearly about living as disabled people in time:

Three meanings of 'crip time' )

Three more viewpoints on "crip time" in the complete article at

http://dsq-sds.org/article/view/5824/4684

jesse_the_k: Underwater picture of chubby woman stroking and blowing bubbles with a grin (lynne cox swimming)

After reading Ursula K. Le Guin's essay on the election, I was, for a few moments, able to breathe deep and focus on the long view. I recommend it to all, especially the anxious & paranoid:

begin quote
My song for many years was We Shall Overcome. I will always love that song, what it says and the people who have sung it, with whom I marched singing. But I can’t march now, and I can’t sing it any longer.

My song is Ain’t Gonna Study War No More.

Though we’ve had some great scholars of peace, such as Martin Luther King, studying it is something Americans have done very little of.

The way of the warrior admits no positive alternatives to fighting, only negatives — inertia, passivity, surrender. Talk of “waging peace” is mere glibness, you can’t be aggressively peaceful. Reducing positive action to fighting against or fighting for, we have not looked at the possibility of other forms of action.


end quote

http://bookviewcafe.com/blog/2016/11/21/the-election-lao-tzu-a-cup-of-water/

Thanks to [personal profile] sonia for the link.

jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (Default)

In the blog “People Aren’t Broken,” Jen discusses disability issues in a very useful way, while also examining her experience, politics, sexuality. two paragraphs to make you think )

http://www.peoplearentbroken.com/?p=816

jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (Default)
Dave Hingsburger is a reliably educational blogger. Today's post about a TV show not only demonstrates excellent rhetoric, but offers some useful history on getting it wrong, and then facing the facts and doing it better.

begin quote We planned a weekend where we could simply dive into the show and enjoy being entertained. And, we were. Because of the nature of the character we were a little worried that, in proof of his 'coolness', he would let slip with the 'r' word. But, no, episode after episode passed and we thought we could relax.

Then in an episode written by Mr. Boxen, the character created and played by Mr. Hawco, tosses the word, of course as a pejorative, at another cast member. We actually paused the episode to calm ourselves. It was clear that the word was carefully chosen and purposefully used. Unlike with epithets used against other minorities, which are employed to demonstrate the negative nature of a character, this is a word (which is widely and openly reviled by the disability community) that is actually used to increase the 'coolness' factor of a character. The use of the word, in the manner it was used, shows a knowing willingness to hurt one group of people to curry favour and impress another. This kind of purposeful bigotry ought to be loudly condemned, however, it is this - my complaint - that will be attacked. Every legitimate call for the concept of respectful language to include disability concerns are ignored by the powers the be and attacked by supporters of the status quo. Those who wish the freedom to hate mask themselves as fighters for the freedom to speak. quote ends

Then Dave details how Charles Dickens entertained complaints about his anti-Semitic framing of Fagin in Oliver Twist. Since his works were published in serials, he was able to make some changes mid-novel — and did so. I'm not holding Dickens up as a perfect exemplar — I don't think there are perfect humans — but he's certainly outside the "cruncy granola circle" I hear invoked when folks like us get mad about bigotry in literature and performance.
jesse_the_k: White woman with glasses laughing under large straw hat (JK 52 happy hat)
I've been busy recently. Here's what I know

I'll be at WisCon )

I'm channeling Alex Trebek )

How (& how not) to write about disabled characters )

Particularly for [personal profile] sparkymonster, but I think everyone can benefit from a wee octopus:
a very tiny pink and almost transclucent octopus flat on its belly, with all 8 legs splayed out )

Today has been really, really, really, hard. Here's some of why:

Today has been really really hard. )
jesse_the_k: cap Times Roman "S" with nick in upper corner, captioned "I shot the serif." (shot the serif)
The What Sorts of People Should There Be? project considers "concerns around human variation, normalcy, and enhancement" with contributors from inside the lives of people who are often the objects of study. Contributors include philosophers, scientists, and community activists.

They host a blog at whatsorts.net, with several years of discussion. Many of the participants are tenured academics, pioneers in the creation of disability studies. The discourse level often is above my head, although some of the sentences do yield their meaning on fifth or sixth rereading.

Lazy me wonders "why bother?" but there are definitely pearls:

This discussion of how to label the two groups to be studied in cognition research neatly demonstrates how the idea of "objective science" is reinforced through language and exposed through contemplation. The researcher wants to find the right labels for "kids on the autistic spectrum" and "the others" in their project. Yet assigning the label scrawls all over the blank slate of research.
jesse_the_k: Drowning man reaches out for help labeled "someone tweeted" (someone tweeted)
This is all over the nets this morning. It's the perfect "tag" or "stinger" for news machines: it's got Web 2.0 tech, plus a stigmatized unseen impairment (mental health, in this case, major depression), plus a thin woman wearing a bikini.

Canadian insurance company cancels her disability benefits, claiming her happy Facebook photos demonstrate fraud by payee with depression

More reasoning errors thanks to over-broad metaphor. Major depression is not simply "sadness." It's emptiness, it's exhaustion, it's pain, it's worthlessness, and most perniciously, it's isolation. On my own, it's even harder to believe that I have things to give, a will to act, access to succor, or valuable qualities.

That's why I treasure the regular activities which drag me out into a social universe.

Also, I adore that a trip to somewhere warm or light is economically termed a "sun vacation" from the cold & dark Canadian perspective.
jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (loved it all)
Abound at the new blog:

Forward!
FWD/Feminists With Disabilities

Every post is gold, and today's favorite delves deeper into the disabling metaphor issues so close to my heart.

One More Voice

Friday, October 9th, 2009 09:01 pm
jesse_the_k: Ultra modern white fabric interlaced to create strong weave (interdependence)
Any reader of this journal won't be surprise to hear how I feel about feminism and disablism. I've ranted many places about the harm caused by disabling metaphors.

I care about feminism because it saved my life: provided connections with women who helped me think and learn the world. It was feminism that taught me to challenge received wisdom; that the personal was political; that language mattered. As my impairments worsened, I began to experience disablism on the job, among my friends, from the medical establishment, on the bus, and most troubling of all, in my soul.

Women are definitely more likely to live with impairment in all societies. Our lives are longer, so we have a better chance of experiencing hearing and vision and stamina losses. Women get significantly more auto-immune illnesses (arthritis, diabetes, MS).

Even if you have no impairment now, chances are excellent you will be later in life. Losing one's typical privilege is a difficult experience without battling the bad attitudes inside one's own head. Learning why disablism is wrong now will make your life easier later.

The occasion of impairment offers Western society ample opportunity to poke into women's lives, even if we are ourselves typical. Three top intrusions:

1. The default responsibility to provide unpaid care to family members
2. Our duty not to have disabled children
3. The expectation that the final years of our lives are "useless."

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