jesse_the_k: tiny slice of sunlight peeks out in cloudy black sky (clouds 2024 eclipse)

Yesterday I accompanied MyGuy to his colonoscopy. We entered a small room with a surgical bed, vitals station, the now-ubiquitous bedside computer, and a parking space for me. After he donned the hospital gown, nursing staff connected him to the vitals station, and started a saline drip. They wheeled him off to the procedure while I waited in the cubicle. I distracted myself with some Sherlock fanfic.

Suddenly the door was opening. An unfamiliar nurse was wheeling a complete stranger backwards into the space—I asked should I remove my husband’s clothing if someone else was using the room. She said, “Of course not, he will be putting them back on in a few minutes.” Seeing my puzzled face, she said, “Don’t you recognize him?” I was still stunned—who were these people? She swung the bed around so I could see his eyes. The estranged swirl of jamais vu vanished, and I saw his lovely face, his smile enhanced by recent doses of fentanyl and midazolam.

All went well, and 45 minutes later we were in the taxi back home. I’d read of the vu triplets—presque, déjà, jamais—in Catch-22 when I was a teenager, but this was my first experience of jamais vu.

Very disconcerting—have you experienced this?

jesse_the_k: chainmail close up (links)

Ugh I’ve got a chest cold which could mean endless coughing. The good news is I have a recliner for sleeping mostly upright, and copious amounts of guaifenesin-pills-and-water, and the right sort of social network.

My public library’s Kanopy subscription provided two profound films, both under nine minutes:

  • CODA is an animated short from 2015. This Irish masterpiece follows a lost soul’s encounter with death. Pro captions, no audio description, no gore. Watch on YouTube or stream here )

  • Bacon & God’s Wrath meditates on loss of faith when Razie Brownstone, at age 92, tries bacon for the first time. CONTAINS: Very lifelike animated dead pig’s head, racist autocomplete results, emesis mentioned. Watch on YouTube without captions or stream here )

jesse_the_k: Closeup realistic drawing of an eye where lower lashes are four fingers crawling up over the lower lid (hand eye comic)

Skyview skyview.social lets you view and share Bluesky threads without needing an account. It offers a tree view, as well as an unrolled (all replies) and embed (haven’t tested it). Plus bots to save all of those; claims to track nothing.

I’d offer an example but even the briefest time on Bsky today has crashed my news wall like woe.


Excellent tool for managing time zone information https://dateful.com

The link you create a link automagically translates an event’s time to the user’s current time zone and day. When you create a free account, you can edit those links.

For example, a Media & Disability Communication Online Con


Seen on electric signboard on US Highway 12/18 E just south of Madison, 23 November 2024

Make it to deer camp safely buckle up


[personal profile] resonant revises John Henry for the modern day:

The Ballad of John Henry's CEO

You can't fight fate, gotta automate,
Keep the cost of production down, lord, lord,
The cost of production down.

https://archiveofourown.org/works/62395177

First published in 2012, still relevant as fuck.


I’ve always known that the most stressful equipment failure is when something breaks on my powerchair.

Previously, I would have put computing equipment in second place, but today I learned a new contender: when my tea kettle won’t turn on! Thankfully MyGuy recognized I was in anxious mode, and the store had a replacement, and all is well.

Well, all is .... I have tea.

jesse_the_k: cross-eyed sheep tongue extended (sheep blep)

Thanks, [personal profile] pauraque for giving me S for this six-question meme.

Something I hate

scented shampoo, soap, or similar substances. Fragrances like these trigger coughing fits and sometimes migraines. Weirdly, I developed this sensitivity after I quit smoking 10-15 cigarettes/day.

Something I love

sencha green tea, in particular Telsaan Sencha Spring Shizuoka, tragically out of stock

Somewhere I have been

Skópun, Sandoy, Føroyar (Faroe Islands).

more about that tripIn 1971, I visited my sister & her husband for two weeks. He was studying Skópun and its people for his PhD in anthropology. She was studying everything in sight. My sister wrote a novel about it and my former-brother-in-law wrote several scholarly books. I took many wild ferry rides, snacked on skerpikjøt (fermented lamb) and turranfisk (fermented fish), and admired the beauty and strangeness of these tiny islands in the middle of the Atlantic. This was decades before the first undersea roundabout connected most of the Faroe Islands with roads.

Somewhere I would like to go

Shetland Islands, Scotland or Svalbard, Norway, especially during midnight sun season.

Someone I know

[personal profile] sasha_feather! I introduced her to a disability rights framework at WisCon. She enthusiastically joined in and succeeded me as WisCon Access Chair. She introduced me to Stargate Atlantis thence LJ thence DW fandom. We’ve had weekly lunches almost continuously for more than a decade.

Favorite movie

I'm drawing a complete blank. I loved Miyazaki's Spirited Away when it first came out--I should rewatch and see if still shines.

Want to play? Raise your hand for a letter.

jesse_the_k: portable shortwave radio (radio)

Folk singer Jesse Welles [youtube.com profile] hellswelles wrote a great song about why companies like United Healthcare are horrible:

You paid for the paper,
you paid for the phone,
you paid for everything you need
to deny what you’re owed.

Play on YouTube or stream it here )

Lyrics and Guitar Tablature

I grew up in the 60s, when protest music was played on commercial radio. In the 70s, I played rhythm guitar and sang alto in several protest bands. We played at rallies and on picket lines, as well as small clubs in my town. Sharing a song with a crowd feeds my soul.

Any protest music that’s speaking to you right now?

jesse_the_k: kitty pawing the surface of vinyl record (scratch this!)

Listening to a new performer handling a well-known tune is my favorite introduction to their style and philosophy. Of course there’s a website for that: Second Hand Songs. Here’s their data on the lovely tune "Blues Run the Game," which you may have learned from Simon & Garfunkel if you’re a boomer.

https://secondhandsongs.com/work/4015

one version and 134 other interesting takes )

jesse_the_k: White woman gazes up doubtfully, thick gray hair on top and very short sides (JK 68 undercut & dubious)

Thanks to [personal profile] oursin for these questions—if you’d like to continue the meme, raise your hand in a comment.

Have you read anything lately that really blew you away?

Cost of Living, an essay collection by Emily Maloney

Her precise, funny prose explores the interface between social norms and actual brains at personal and societal levels. Her neurodivergent thinking brings insight from her own experiences on both sides of the US medical complex. As a suicide survivor and psych patient, she acquired huge medical debt while getting inaccurate diagnoses and physical mistreatment. To pay down that debt, she worked as an emergency-department—based EMT tech, often in charge of doling out medications she was also taking. She translated medical studies into marketing copy for large pharmaceutical companies.

Two hundred words on the "opiate crisis" and pain prescribing:

within )

If you were in a murder mystery, what part would you be playing?

The clueless guest who keeps asking “What’s going on?”

Is there is a musical instrument you wish you could play?

Sighs mournfully in F minor. The acoustic guitar I played daily from age 13 until I could no longer physically handle it, ca 33.

Favourite season of Buffy?

Season 3. I like the Faith-Buffy tension.

What kind of weather do you find most congenial?

Sunny with many puffy clouds, a fresh breeze, and temperatures between 50 and 65°F (10–19°C)

jesse_the_k: manipulated me, with three eyes and heart shaped face (JK 57 oh really?)

Thanks to [personal profile] goss, here’s a meme

Introduce yourself with some jobs you have done apart from what you do now

I retired from paid employment in 1990, and since then I’ve been a disability rights advocate, helped herd SF con cats, and typed & read many many things on the internet.

Before that, I was…

  1. Photocopy clerk & summer gofer at ETS which runs high stakes educational testing like GREs, TOEFL, and SATs
  2. Data tape librarian, keypunching the journeys of 9-inch tape reels between their storage cabinets and the tape drives where student loan data was read and written
  3. Ten-speed bike assembler and mechanic
  4. Civil engineering drafter who insisted that fire stations needed both men’s and women’s bathrooms
  5. Phototypesetter, stat camera operator, pasteup artist, and staff designer

Ugh

Wednesday, November 6th, 2024 08:50 am
jesse_the_k: Lucy the ACD's butt & tail are all that's visible since her head is down a gopher hole (LUCY gopher hunter)

We have survived bad times before with mutual aid.

Still maintaining my news wall.

I appreciate it when people tag relevant content with "politics"

People with paid DW accounts can filter posts by tags

Tags: Show only content that is labeled with a certain tag or tags, or only content that is not labelled with a certain tag or tags (people sometimes refer to this as "blocking tags").

https://www.dreamwidth.org/support/faqbrowse?faqid=76&q=filter

jesse_the_k: Robot dog from old Doctor Who (k9 to the rescue)

I just listened to a This American Life episode (audio or transcript) where David Kestenbaum, an experienced science journalist, kvelled about how awesome Chat GPT is, how they are truly approaching AGI—artificial general intelligence. His turning point was that the large language model was trained on text, and wrote its own graphic-generating program when prompted to show an image. And that's pretty cool, but ...

I asked ChatGPT-4o some super-basic questions about my family history, all documented in US Census data. The results were stunningly bad.

My maternal grandfather's cousin was Richard Neutra, who was a well-known modern architect. ChatGPT-4o insisted that everyone in my family was related to him--that my maternal grandmother was really married to him. It would show accurate 1940 Census data—-my maternal grandmother with her actual name and and then say, but no, my grandmother was actually married to famous person and my mother was his daughter.

It answered an identical census question incorrectly and then correctly in immediate succession.

As [personal profile] erinptah has been diligently documenting, "AI" is simply not there yet, although this hasn't prevented everybody and their dog claiming it as the absolute new hotness.

Verbatim Q&A inside )


I acknowledge that I have no technical qualifications to assess the relevance of these hallucinated answers to the overall reliability of "AI". I welcome new knowledge!

jesse_the_k: Flannery Lake is a mirror reflecting reds violets and blues at sunset (Rosy Rhinelander sunset)

My family is enjoying a week up north near Rhinelander. Eating, chatting, sitting outside without care thanks to a steady 25 mph (40 kph) keeping the mosquitoes away.

Yesterday’s sunset is a thin sliver of peach and baby blue, barely an eighth of the sky, but fortunately doubled in the still lake. Impressive deep blue cumulonimbus fill the rest of the horizon. It’s a gentle end to the day. At 1 am, a very loud thunderstorm woke us all up while dropping 2 inches of rain.

click for pic )

Any exciting weather by you?

jesse_the_k: Magnificant sun rays outline high cloud (clouds Sunny Success)

In particular

Perfect Spring Weather

highs around 70°f/20°c and lows around 55°f/13°c, mostly sunny with flamboyant clouds

Mad Gluten Free Fest

hosted by ALT Brew which makes (you guessed it) GF beer. Found some scones without cream that still tasted great. One vendor claimed bagels, but they were baked not boiled so nevermind. They also sold crypto rye bread. (Caraway seeds helped, but it lacked that nice sour-sweet flavor I remember).

The Blessing of the Bicycles

hosted by Trinity Lutheran Church, aligning with

Madison Bike Week

It’s been an institution for decades. Several mayors have rode in previous years; the current mayor regularly commutes on her bike. In a former life I was a bike mechanic and enthusiastic 3-season cyclist. Now I love the extensive bike infrastructure because the paths are blacktop (asphalt aka bituminous) which means much smoother rolling in my powerchair, at its full speed of 6.5 mph/10+ kph. Even better, the transportation department decrees that the bike routes be cleared to the same schedule as the "salt routes," which are the key roads for getting to school and to work

Best get-out-the-vote metaphor

Thanks, [personal profile] sonia for pointing me:

“Voting isn’t marriage, it’s public transport. You’re not waiting for “the one” who’s absolutely perfect: you’re getting the bus, and if there isn’t one to your destination, you don’t not travel—you take the one going closest.” From Vicky James on Medium

What lovely things happened to you?

WisCon thoughts

Saturday, May 25th, 2024 03:10 pm
jesse_the_k: White woman with glasses laughing under large straw hat (JK 52 happy hat)

Seventeen years ago, I volunteered to join the convention organizing committee (concom) for WisCon, an annual feminist SF convention held in my town. For sixteen years, the month of May was a festering cauldron of anxiety as I prepped for the event. Even after I handed off all my duties to other concom members, I couldn't let it go. Arghh, brains.

This May has been easier because WisCon is taking a Gap Year. If you're feeling chatty, the WisCon Gap Year Discord Server is for you. how to participate )

I'm proud that my concom work helped to provide a foundation for a more accessible WisCon, and thrilled that other event planners built on that work.

I learned a lot at WisCon, and I think the conversations we had, the relationships we built, the connections we nurtured have changed the SFF community. At its founding, WisCon made a place for feminist exploration. I think WisCon was part of a generational shift that means those conversations are happening all over the SFF world. If it turns out that 2023 was the last WisCon, it was a rousing success.

Evidence of absence

Wednesday, January 31st, 2024 07:57 am
jesse_the_k: Robot dog from old Doctor Who (k9 to the rescue)

Hooray! Out into the world again.

I'm so grateful that MyGuy had an easy time, that maintaining adequate isolation wasn't that onerous, and that I didn't get it (yet).

Now I can go back to the pool (full of highly vulnerable people, so I was super cautious).

two negative Flowflex COVID test cartridges )

jesse_the_k: Elderly smiling white woman captioned "When I was your age I had to walk ten miles in the snow to get stoned & have sex" (old fogey)

Instead of stressing over making a perfect essay, I’ve numbered this summary so it’s easier for you to ask for elaboration.

five joys )

four sorrows )

jesse_the_k: Wisconsin license plate "B KRE8V" (Wisconsin Creative)

Back in August we got a new van — and wow howdy the surveillance state has arrived at a car dealership near you. The place we bought it tried seven times to get our email — so they could send updates to the car. It comes with three months of free satellite connectivity and defaults to connecting to any mobile device within its red doors.

ridiculous details )

The good news is there's room for MyGuy to drive my chair up steep ramps into the back, Bella likes it, the seats are comfortable, and we've already scratched it (so we no longer need to be hyper careful).

Any vehicular news in your life?

jesse_the_k: Baby wearing black glasses bigger than head (eyeglasses baby)

Since 1960 I've been wearing complicated thick glasses which attempt to correct my divergent eyes. No matter how well made, when my eyes tire I get double vision anyway. I’ve become accustomed to closing my left eye, depending on the stronger right eye. This year I decided to fuck it. I was able to optimize my vision by using other tools in addition to the glasses.

200 words and 2 pictures )

Who me, praying?

Thursday, March 30th, 2023 07:02 pm
jesse_the_k: dark clouds frame sun rising between standing stones (clouds dawn stonehenge)

I was raised as a stone atheist by first-generation secular Jews. Their parents escaped the Pale of Settlement at the start of the 20th. Which is to say, no spirituality in my upbringing.

And I’ve been meditating daily for the last eight years, starting with a secular MBSR course.

Most recently I've embraced the Metta "loving-kindness" meditation which has proven helpful through some difficult times.

The Metta practice offers good will and compassion through set phrases applied in widening circles. First my most loved one, then friends, then folks I don’t really know, then people with whom I have difficult relationships, then to myself, and then the planet. I’ve encountered hundreds of variations in the phrases. Many say "May [they] be healthy," which strikes me as unrealistic. Over the years, I’ve developed an eight-line version which I can both remember and say with full belief.

May you be happy
May you be calm
May you live easily
Free from all harm
May you be hopeful
May you be kind
Floating in love for
Your body and mind.

Since music helps me remember lyrics, I paired these phrases to the Irish tune "Do You Love an Apple." I learned it from Trapezoid’s exquisite harmonies on their album Now and Then.

on YouTube

Do You Love an Apple )

Nothing lovely in the original lyrics: woman loves man, gets pregnant, misses him while he’s out drinking

Have you found spiritual sustenance in this cursed decade?

jesse_the_k: That text in red Futura Bold Condensed (be aware of invisibility)

Installing a new hot air furnace is hazardous to your lungs. It's not just a bad smell. The plastic exhaust piping requires a chemical formally known as "pipe dope" to connect the new box to the existing vent. The furnace itself is coated in anti-corrosive materials that get burned off in the first hours of operation.

This lesson was learned the hard way. Four puffs of ventolin and a true N95 didn't stop the constant cough, so I bundled up and rolled around the block until they finished. Then MyGuy opened windows on all four corners (to a nice sunny winter day: 25°F w 20 mph breeze). I hope the vapors clear out thoroughly by the time I get back from the pool before dinner.

When we woke up yesterday it was chilly. Happily the emergency HVAC folks arrived within 65 minutes, and IDed the issue by smell -- incomplete combustion. The fix is a new furnace, which cost just 10% more than the 20-year-old busted one.

jesse_the_k: Masked white woman with purple hat on a boat (JK 65 jazz hand afloat)

Final photo from my pontoon boat adventures back in September.

Ten minutes after sunset, the black downtown skyline is highlighted by red, orange, yellow streaks quickly fading into a deep blue sky. The left-most passenger holds up a smartphone camera to capture a picture much like this one.

Read more... )

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