jesse_the_k: tiny slice of sunlight peeks out in cloudy black sky (clouds 2024 eclipse)

Yesterday I accompanied MyGuy to his colonoscopy. We entered a small room with a surgical bed, vitals station, the now-ubiquitous bedside computer, and a parking space for me. After he donned the hospital gown, nursing staff connected him to the vitals station, and started a saline drip. They wheeled him off to the procedure while I waited in the cubicle. I distracted myself with some Sherlock fanfic.

Suddenly the door was opening. An unfamiliar nurse was wheeling a complete stranger backwards into the space—I asked should I remove my husband’s clothing if someone else was using the room. She said, “Of course not, he will be putting them back on in a few minutes.” Seeing my puzzled face, she said, “Don’t you recognize him?” I was still stunned—who were these people? She swung the bed around so I could see his eyes. The estranged swirl of jamais vu vanished, and I saw his lovely face, his smile enhanced by recent doses of fentanyl and midazolam.

All went well, and 45 minutes later we were in the taxi back home. I’d read of the vu triplets—presque, déjà, jamais—in Catch-22 when I was a teenager, but this was my first experience of jamais vu.

Very disconcerting—have you experienced this?

Evidence of absence

Wednesday, January 31st, 2024 07:57 am
jesse_the_k: Robot dog from old Doctor Who (k9 to the rescue)

Hooray! Out into the world again.

I'm so grateful that MyGuy had an easy time, that maintaining adequate isolation wasn't that onerous, and that I didn't get it (yet).

Now I can go back to the pool (full of highly vulnerable people, so I was super cautious).

two negative Flowflex COVID test cartridges )

jesse_the_k: Large exclamation point inside shiny red ruffled circle (big bang)

MyGuy and I both showed negative on our COVID antigen tests at lunch. Forty-four hours and counting!

Two Annoyances

Sunday, January 28th, 2024 10:44 am
jesse_the_k: <a href="https://web.archive.org/web/20040204184222/http://developer.apple.com/technotes/tn/tn1031.html">Bitmapped "dogcow" Apple Technote 1013, and appeared in many OS9 print dialogs</a> (dogcow from OS9)

MyGuy is feeling "no symptoms" from COVID, but he's still testing positive. Masking inside is tedious. I sleep much better when we're sharing a bed. Grr, arrrgh.


My Mac is twitchy and cranky. None of my smart mailboxes in Mail are showing what worked two months ago. Mail Activity shows "Moving messages ..." with a value that doubles every day (Friday it was 12, today it's 115).

My Safari extensions are failing randomly.

I've got several backups and I'm planning to wipe and reinstall and start fresh, which I haven't done since Mountain Lion!

If there's pitfalls to avoid, please let me know.

jesse_the_k: Extreme closeup of dark red blood cells (Blood makes noise)

so far a mild case, boring details inside )

ETA: I may be negative but my brain is still mushy and correcting for future self -- this all started on Monday, not Saturday

We had some snow

Tuesday, January 9th, 2024 05:30 pm
jesse_the_k: Snowflake pulses white and blue (snowflake GIF)

The warnings were dire, but so far we've only had 4-5 inches on the ground. The snow is very heavy and wet and it's barely freezing. That's good news on the street, where it rapidly melts. It's sad news in the backyard, where thick snow brought down three branches on our oldest pine tree, which blocked the street behind our house. Thank heavens for neighbors with chainsaws.

Earlier in the day, MyGuy and Bella went exploring on the bike path. It's a tunnel of white: snow covers the path itself, all the vegetation on the sides, and weighs down the branches of the trees and bushes. Since our black mutt Bella is certain there's something exciting just ahead, her leash is stretching forward into the future.

click for pic )

jesse_the_k: Elderly smiling white woman captioned "When I was your age I had to walk ten miles in the snow to get stoned & have sex" (old fogey)

Instead of stressing over making a perfect essay, I’ve numbered this summary so it’s easier for you to ask for elaboration.

five joys )

four sorrows )

jesse_the_k: Modern design teapot with two cups (Share tea with me)

I first encountered the term brain fog in the mid 1990s on a fibromyalgia listserv. I see it popping up all over mainstream media in re: Long COVID.

Vocabulary derail: I’m a picky fussbudget so I describe my current cognitive issues as "trouble making new memories" as well as "difficulty word-finding."
massive frustration derail: can't nail down the source of these impairments: candidates include ME/CFS, fibromyalgia, PTSD, depression, anxiety as well as the medications I take for all those things.

Spilling the Tea )

It took me four months to realize that I needed to use a teapot I'd already bought to make tea.

That is brain fog.

How do you feel about the term brain fog? Does it build a bridge from our disabled experience to non-disabled people? Does it minimize the impact? Feel free to rant.

jesse_the_k: (igloo)

We've had a warm fall so far -- no frost yet! MyGuy and I live on the edge, so we didn't turn on our heat until last night (39°F/4°C). Which led me to wonder about your relationship to heating, ventilation, and air conditioning.

that's why we have polls! )

jesse_the_k: rose glass pendant hangs from beaded chain with pearls (glass bead pendant)

My fngers are still working well enough to detect tiny measurements.

240 words of details on that )

jesse_the_k: Cartoon of original Mac with screen displaying the "happy Mac" smile indicating successful boot (old Mac)

...after the election I let all my news wall filters go down.

It felt great to be *f*r*e*e* but I encountered lots of toxic stuff that made me anxious as fuck. So I raised my walls a little bit, but still wasn't sleeping well, unable to focus on things I'd formerly liked to do.

Now I've found a balance which works for me.

I've set up my net filtering software -- Freedom.to -- to create cracks large enough to hunt down information, and scheduled to minimize plunging into driven doom-scrolling.

News sites are only available between 11:30 and 11:59 am.

Twitter is only available between 12:30 and 1pm.

I can't follow news links from Twitter -- have to wait a day. Mostly, that's fine. Happily MyGuy, who's connected to the original streaming service (radio) has promised to let me know of anything vital.

jesse_the_k: Red leaf from a pin oak tree (pin oak leaf)

Because we have 30 trees in our city lot, we have lots of leaves in our yard. I just admire them, but MyGuy has to rake 'em for the city to compost.

Bella feels a calling to supervise this important work. The pile starts at least 8 ft wide by 20 ft long by 1 ft high. Over the space of an hour, MyGuy packs it into containers. Bella stays put as the pile recedes.

We acknowledge her leadership.

Three leafy photos with one fixed dog )

Yep, still here

Friday, October 23rd, 2020 02:33 pm
jesse_the_k: Masked white woman with purple hat on a boat (JK 65 jazz hand afloat)

The good news is the surgery went well. Previous trigger finger release was traumatic. That's why I delayed this for around 18 months. Now I know it can be a well-orchestrated procedure with minimal terror and pain. Since this is the sixth time I've had trigger finger I'm sure there will be a next time for me not to put it off to.

The bad news is it's the middle and ring fingers on my dominant (right) hand and wow do I feel clumsy. To ensure that I don't reach for things by mistake, I've installed a very large fluffy mitten.

photographic proof as well as some of my hats )

I'm switching between macOS/iOS forms of dictation, voice control, sticky keys, and bashing my head gently against a pillow—it's very weird to go from typing 80 words a minute to whatever I don't even want to count.

In summary: medical procedures don't have to be traumatic!

You really don’t know what you’ve got til it’s gone. Last week I was starved for content. Now I’ve got six posts I could draft if I could only type. Not to mention eight pieces of beadwork I would craft if I could only use my right hand.

MyGuy is being exquisitely helpful, and still my major mood is Whine.

jesse_the_k: Masked white woman with purple hat on a boat (JK 65 jazz hand afloat)

I celebrated my 65th birthday with a boat ride! Thanks to Fayth Kail and other polio warriors, the Madison School-Community Recreation service has three wheelchair accessible pontoon boats. Cloudy and breezy and fresh! We’d hoped to fill a boat with lots of pals, but were limited to just six people.

MyGuy gave me the perfect present -- thanks to the strings fore and aft, my new hat stays on even when traveling 15 knots on a windy day.

me picture )


hat picture )


Sky picture )

jesse_the_k: Closeup of my black mutt's left eye (BELLA focused eyeball)

MyGuy learned homemaking from a pro — his mother. She ended up running the home economics division at Blackhawk Technical College (now called Human Services and Education). Oh so fortunately for me, MyGuy was responsible for cooking dinner for all six of the family once a week, as well as doing laundry and mending and also helping his dad build their house.

MyGuy ensures we know which eggs are hardboiled by personalizing them.

two pictures of two sides of two eggs )

How do you keep your eggs sorted?

jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (lost youth)

...seems to be on the agenda. (We're fine, Bella's getting better.) MyGuy and I are finishing up our will, designating personal representatives who get delegated to herd our health and wealth In The Event.

From [twitter.com profile] BlairBraverman's regular column in Outside magazine, pondering the grief we feel after losing a dog, and how we can imagine the next dog.

What to Do When You Lose a Dog

Dogs’ lives are short to us, but not to them. To them, their lives are the length of lives.

The burden of this, the hardship, falls on us—we outlive our best friends. But it also allows us to give them a gift. A dog can pass through puppyhood, adulthood, and old age in the company of caring humans. They can live their whole lives on earth in a cocoon of love.

Dogs exist in each moment. They are shallow in the best of ways: their life consists of the things they’re experiencing now. They want to be loved, they want attention and snacks and walks, they want gentle hands on their fur while they drift to sleep. The best thing we can do for dogs is to make their moments good. If their moments are good, then their lives are good, too.

And when we lose them?

They give us one last gift, which is that we can grieve like dogs. Moment by moment. Not by living in the past or the future, but by taking the sorrow as it comes.

Storms Are Passing

Wednesday, October 2nd, 2019 05:51 pm
jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (Be kinder)

Thank you so much for your kind thoughts!

Bella’s eating dinner

as well as the eighteen pills daily they sent her home with. Luckily, she loves almond butter and needs to regain weight lost over 7 days not eating. Plop a pill in a gob of almond butter and she simply thwips it down. The immunosuppressive Cyclosporin is sufficiently toxic that we have to don gloves to stuff it down her throat, and the pills themselves are huge. For these we have to pry open her jaws, jam the pill on the very back of her tongue, then stroke her throat until she swallows.

No physical damage from the crash

I was too ashamed to check in with my primary doc after the crash, even though my pain levels have stayed elevated. MyGuy finally convinced me, and I saw my doc today. He confirmed that my pain was consonant with a terrifying incident. We agreed that I got away lucky.

In convo with my therapist, I realized

  • while the driver and witnesses did shit to be helpful
  • I was capable of taking care of my own needs and therefore
  • Prevented further damage
  • Reached out for support to helpful people, like you

All good things. The final realization is one I’ve packed away in my lock box for further examination next session: the driver was in many ways acting just like my father.

Bella's Home

Tuesday, October 1st, 2019 06:50 pm
jesse_the_k: Black dog on patio tongue tip showing (BELLA at ease)
....with a grocery bag full of drugs.

Vets are optimistic that she'll be fine.

Thanks for the good wishes which have definitely helped keep us all on track.

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