Orphan Drug Act: Policy Design on 99% invisible podcast
Wednesday, November 14th, 2018 10:11 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
jesse_the_k99% invisible is #1 on my podcast list—I listen as soon as it drops. This week's program exemplifies why I love the show. Its mission is "about all the thought that goes into the things we don’t think about — the unnoticed architecture and design that shape our world."
It's beautifully produced, and their website provides complete transcripts with additional visual resources.
https://99percentinvisible.org/episode/orphan-drugs/
Episode 329, Orphan Drugs, fills thirty minutes with a very U.S. story:
- why drug companies systematically ignored effective medicines for rare diseases
- the woman who campaigned for change
- an affected, influential individual who noticed a small press mention
- the popular TV show that amplified a policy issue with effective drama
- the Orphan Drug Act legislation that provided Big Pharma with financial incentives to sell low-incidence medicines
- the unintended consequences: needed medicine for the end users, and huge profits for Big Pharma
It's beautifully produced, and their website provides complete transcripts with additional visual resources.
https://99percentinvisible.org/episode/orphan-drugs/
Episode 329, Orphan Drugs, fills thirty minutes with a very U.S. story:
- why drug companies systematically ignored effective medicines for rare diseases
- the woman who campaigned for change
- an affected, influential individual who noticed a small press mention
- the popular TV show that amplified a policy issue with effective drama
- the Orphan Drug Act legislation that provided Big Pharma with financial incentives to sell low-incidence medicines
- the unintended consequences: needed medicine for the end users, and huge profits for Big Pharma