jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (focused eyeball)
[personal profile] jesse_the_k
Season 2, Episode 1 of This American Life/TV is called "Escape." It's the best 30 minutes of documentary TV I've ever seen.

The first story is quite brief and, unusually for this show, told solely through pictures and first person narration. It's the surprising tale of urban cowboys: young people whose beautiful horses step proudly along Philadelphia sidewalks until they reach a huge park. There the horses and riders pound down the turf.

The second story introduces us to Mike Phillips, a 27-year-old blogger who has muscular dystrophy. At the time of filming, he can move his facial muscles and one thumb. He had a recent emergency tracheotomy which prevents him from speaking, so he uses a voice synthesizer program to speak.

Remarkably, this story is not about bravery, overcoming, or any other standard disability narrative. It's about families, independence, finding love and freedom via Craigslist. Mike's been able to stay out of a nursing home mainly because his mother has slept by his bedside for most of his life, ready to reconnect any of his life support systems when they fail. Partly thanks to talking about his life via email and in person with the This American Life documentary crew, he's hired his first personal care attendant; he hopes to use Medicaid waivers to eventually move out on his own.

Check Mike's blog, My Whole Expansive I Cannot See, for his thoughts on the process of making the documentary. A nice photo of Mike and his sweetie, Sara, is featured in this pretty good "human interest" piece from his hometown paper, the St Petersburg [FL] Times

This American Life's Escape episode is viewable for a limited (but unknown) time as a teaser on the U.S. Showtime network. (You have to sit through three minutes of commercials first; although the DVD is captioned, the online stream is not.) It's also available from iTunes and Blockbuster, but neither have captions. Grrr.
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(no subject)

Date: 2009-10-11 05:19 am (UTC)
raanve: Tony Millionaire's Drinky Crow (Default)
From: [personal profile] raanve
I have long been a fan of TLA, and had Season 1 on DVD & loved it. I pre-ordered season 2 as soon as I was able. Documentaries like this are some of my favorite things.

Even after having been a long-time fan, I was stunned by how amazing this episode is. (Even more so because it is one that I think could not be done on radio to as great effect as it is done here.) I think that it is the kind of disability narrative we need more of. There is empathy, but not pity. There is unflinching honesty from all parties. It is so much more humanizing than a lot of disability narratives I can think of. I felt it did an excellent job of giving those of us who do not live as Mike does a glimpse into his life without doing a lot of the icky, voyeuristic stuff you might think it would.
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(no subject)

Date: 2009-10-11 08:22 am (UTC)
sasha_feather: Retro-style poster of skier on pluto.   (clothes for disabled people)
From: [personal profile] sasha_feather
WOW ELEVENTY.
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(no subject)

Date: 2009-10-11 04:11 pm (UTC)
ext_27139: A cartoon version of me: a pale-skinned brunette with black cat's eye glasses and a bun. (Default)
From: [identity profile] maeveenroute.livejournal.com
I love that I can always count on you for the best links. I'll try to track this down and watch it, but I *loved* the article. :c)
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(no subject)

Date: 2009-10-12 02:56 pm (UTC)
ext_27139: A cartoon version of me: a pale-skinned brunette with black cat's eye glasses and a bun. (Default)
From: [identity profile] maeveenroute.livejournal.com
Watched it, loved it, plugging it on my FB. ;c)

(I like the cowboys, too!)
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(no subject)

Date: 2009-10-11 05:51 pm (UTC)
jadelennox: Senora Sabasa Garcia, by Goya (Default)
From: [personal profile] jadelennox
Heh. Sara's a friend of mine, and after I watched this episode I called her up and said "OMG your boyfriend sounds like Johnny Depp!!! sexy!" They've split up now, sadly.

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