jesse_the_k: Ultra modern white fabric interlaced to create strong weave (interdependence)

Wow I loved this doc! Is there anybody out there?, 87 minutes, UK, 2023. Directed by Ella Glendining, in English with precise captions and audio description.

Blurb:

Born with a rare disability, filmmaker Ella Glendining wonders if there is anyone who can share the experience of living in a body like hers. This simple question—one which non disabled people take for granted, leads to a journey to not only others who live like her—but to the realization that meeting them changes how she views herself in the world, as well as many surprises along the way.

Glendining includes archival footage of her own childhood (older videotapes with flashing lights across the bottom of the screen) as well as horrifying evidence of rank bigotry that disabled kids in the UK. She talks about loving bodies, her own and others’. She documents accepting parenting from her own youth and with her own child, as well as the challenges of wanting to have a "perfect birth" (no drugs, no knives). She demonstrates access intimacy and cross-disability solidarity, interacts with one great doctor and one surgeon-on-a-mission to normalize kids through massive pain, and finally answers the title question yes! meeting three people with bodies similar to hers. I got bi vibes from the doc but I don’t remember her explicitly coming out. In this extensive interview at Diva Magazine, she does explore her bisexuality: https://diva-magazine.com/2023/11/13/ella-glendining-is-there-anybody-out-there/.

I want every parent of a kid with orthopedic impairments to watch this film today, before they ponder any more "treatments." It would also be a great discussion starter for a classroom or activist group.

Where to watch and trailer )

jesse_the_k: ACD Lucy holds two blue racketballs in her mouth, side by side; captioned "I did it!" (LUCY success)
50 lb dog with shiny black-brown fur, white stripe down her nose and prick ears poses like the Sphinx, with her rear legs folded and her front legs outstretched )

Bella has burrowed her way into our hearts. Last week the Underdog Rescue placed Bella in our care. We've enjoyed every moment of our time with her.


She's a remarkably lovely dog. She's a young adult, though we don't know her exact age. She herded all the children in her first Madison placement , so we suspect she's got some Border collie in the mix. Her fur looks black from a distance but up close it's a deep brown; so maybe there's some chocolate lab heritage. We're thrilled with how easy* she is:


  • She greets everyone with a wiggle and a kiss, genuinely pleased to meet new people and dogs.

  • Her fur is as soft as a rabbit's coat, and she's so soothing to pet.

  • She enjoys playing, walking, and sleeping equally.

  • When she sleeps, she emits comforting snores, snuffles, and wheezes.

  • She came to us already potty- and crate-trained

  • She already knows "sit," "no," "come," and "drop it." In less than 10 days she's well on her way to "down," "hupup," and "off."


Black dog 35in from nose to base of tail, lies on her back, all 4 paws in the air. Front two paws meet the outstretched palms of MyGuy, an older white fellow )
*: We assumed all dogs were challenging after 14 years with Teddy the Neurotic, then 15yrs with Lucy the Alpha Bitch.
jesse_the_k: Sign: torture chamber unsuitable for wheelchair users (even more access fail)
[Thanks to Carly Findlay, I've untangled who said what from yesterday's post; here's the revised version.)

"The Mighty" is a site funded by a US TV network executive. Real money is available to make an online magazine whose stated mission is Real People. Real Stories. We face disability, disease and mental illness together.

Mid-December, they published a mother's story about "Meltdown Bingo," where she described how her autistic son melts down. For a long time disabled writers have spoken up about the parental focus of the site. The "Bingo" article foregrounded the mom while invading the son's privacy. After a Twitter storm
https://twitter.com/search?q=%23CrippingTheMighty
The Mighty pulled the story
http://themighty.com/2015/12/editors-note-why-we-removed-a-story/
and invited disabled writers to participate. But The Mighty won't pay for prose, and the editors have changed submitted copy to swerve focus more to parents. Among the many angered by The Mighty, two Australian bloggers invested heavily in educating its editors. They joined the Mighty's private Facebook group for contributors and diplomatically discussed how previous stories were ableist, and how to improve. The Mighty's reaction was rapid and hostile. They banned the new writers from the Facebook group.
Refusing to Listen )
Phone call with Mighty staff has no impact )

Some things do improve

Wednesday, October 7th, 2015 08:39 am
jesse_the_k: harbor seal's head captioned "seal of approval" (Approval)
Last week I went to an informal get-together organized by UW students for folks interested in academic disability studies as well as community activists and disability services providers.

Heard two tales which opened up my heart and gave me hope for the future.
re raising Deaf kids and organizing disabled students )
jesse_the_k: Underwater picture of chubby woman stroking and blowing bubbles with a grin (lynne cox swimming)
I hinted back on the 3rd, that I'd begun two self-improvement programs. The jinx is off one of them. I think it's one reason I've been feeling much less depressed and cranky and I've had fewer headaches, and I want to share and boast.

So That's Me, Dunked )

(Yes, it's chlorinated. I've given up soap and shampoo; I apply Aveeno lotion after I rinse off; and MyGuy generously buzzed off most of my hair.)
jesse_the_k: barcode version of jesse_the_k (JK OpenID barcode)
Think & Smell )
The air can fail us along several dimensions. In addition to being stinky, it can have lumpy bits—such as dust and particles––or toxic bits—such as poisons or radioactivity. In addition to a super-sensitive sniffer, I have reactive airways. Any bits make me cough and prevent me from breathing. Unfortunately, we're having an ORANGE particle alert tomorrow in my part of the world. I'm glad I can stay home. As is probably the case all around the U.S., and certainly in Mexico, the worst air conditions are experienced by workers waiting outside for public transportation.

Intro to Decent Home Training via The New Basic Black )

read Marina she's amazing )

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